The 14th Annual & Last Dash…
We invite you to run or walk in the Final 5K Shwachman Diamond Dash Saturday June 17, 2017 at 9am
Shwachman Diamond Syndrome is a rare bone marrow failure syndrome in which there is no
known cure. There are currently about 500 cases worldwide. Currently, it affects a young member
of the Sayville community. Not enough research is being done due to the lack of funding and awareness
of this syndrome. Shwachman Diamond Project, Ltd. raises monies that go directly to research into a cure
and also funds projects into cord blood research. After 14 years this will be our “Last Dash” For a Cure.
Entire proceeds to benefit Shwachman-Diamond Project
Thank you so much for being here. For me it is that time of year again. That time of year where I look around and see I am not alone. That Dylan, is not alone. I look around and see all the time & effort of everyone here & am reminded…
Dylan Egan Kolar, now a lively 15 year old living in Sayville, was diagnosed with Shwachman-Diamond Syndrome (SDS) at the age of one. Within his first year, Dylan received eight blood transfusions and was hospitalized a number…
What is SDS?
DISEASE INFORMATION First described in 1964, Shwachman-Diamond Syndrome is a rare disease which mainly involves the pancreas, bone marrow and skeleton, but other organs may also be affected. Next to Cystic Fibrosis…