Join Us for the 7th Annual
Shwachman Diamond Dash for a Cure 5K
Saturday June 19, 2010
Thank you to all 1000+ people who came out for the 7th Annual Shwachman Diamond Dash! Your commitment is greatly appreciated!
Sayville Fire Department invites you to run or walk in
The 7th Annual Shwachman Diamond Dash for a Cure 5K
Saturday June 19, 2010
Sunrise Drive Elementary School in Sayville, NY
8:30 am 1K Fun Run
9:00 am 5K Run/Walk
(Rain or Shine)
It's not just a run, it's an event! Family Fun! Face Painting! Food & Drinks! Sunny the Duck! Music by Hampton Sounds!
Dylan Egan Kolar, an active nine year old living in Sayville, was diagnosed at the age of one with a rare bone marrow failure syndrome called Shwachman Diamond Syndrome. Within his first year, Dylan received eight blood transfusions and was hospitalized
a number of times for infections secondary to bone marrow insufficiency. He is currently doing very well under the guidance of the wonderful doctors of Schneider Children’s Hospital. But more research is necessary to help Dylan and all the other children struggling with Bone Marrow Failure Syndromes.
Entire proceeds to benefit Shwachman-Diamond Project
Dylan’s Story
Dylan Egan Kolar, now a lively nine year old living in Sayville, was diagnosed with Shwachman-Diamond Syndrome (SDS) at the age of one. Within his first year, Dylan received eight blood transfusions and was hospitalized a number of times for infections secondary to bone marrow insufficiency. He is currently doing very well under the guidance [...]
Shwachman-Diamond Project
The Shwachman-Diamond Project (SDP) is a non-profit charitable organization that funds research into Shwachman-Diamond Syndrome and other Inherited Bone Marrow Failure Syndromes. Thanks in large part to this type of research, the gene for this disease has been isolated. This discovery has resulted in many positive steps toward future treatment and even a possible cure [...]
Understanding SDS
DISEASE INFORMATION
First described in 1964, Shwachman-Diamond Syndrome is a rare disease which mainly involves the pancreas, bone marrow and skeleton, but other organs may also be affected. Next to Cystic Fibrosis, it is the most common cause of pancreatic insufficiency in children. For that reason, it is sometimes confused with Cystic Fibrosis; but in children [...]
