Thank you so much for being here. For me it is that time of year again. That time of year where I look around and see I am not alone. That Dylan, is not alone. I look around and see all the time & effort of everyone here & am reminded that we are lucky. We know that there are many people out there in the world fighting for something. Some sort of cause or purpose. I know that everyone has their own story to tell. To those of you out there…I want you to know that you are not alone. Take a look around. People care.
Dylan is now 11 years old. He has Shwachman Diamond Syndrome. It is a rare bone marrow failure syndrome that affects so few in this world. There is no cure. I am forced to acknowledge this idea whenever I am writing this thank you to you all. I try to dismiss it but, this thought, you see, it stays buried deep inside my brain. It stays deep inside my heart be behind all of the wonderful feelings of denial. Without these feelings of denial, my children wouldn’t be able to say that their mom is always yelling at them to turn off the t.v., clean their room or to finish their homework . Dylan is getting older and so I know it won’t be long before his questions have a need for deeper and more direct answers. It is when he asks these questions that I find myself using distractive measures. These tactics, which I’m sure are wrong, won’t be tolerated much longer. I’m just buying time. I know and understand that life is short and it is what you make of it. And so I encourage all of you to enjoy it. I encourage you all to show random acts of kindness. For without this phenomenon, Dylan & his family would not be as lucky as we feel.
And so here we are once again. Our 9th year. We’ve come a long way. You all keep showing up. And so, we will continue to throw this little party and together we will continue to make strides towards a cure. Together we will continue to make a difference.
Shwachman Diamond Project, LTD. Continues to raise monies for research into a cure. We’ve continue to fund research done by the Fred Hutchinson Cancer Research Center in Seattle Washington. It will continue to fund Cord Blood Research and educate others on not only SDS but other bone marrow failure syndromes. We have a bone marrow drive going on as we speak. We encourage all of you to at least ask questions about it. I have written on the wall of my living room. “Everyday holds the possibility of a Miracle’. I believe that this is true. You can be that miracle to someone. You can save a life.
WE are grateful for the generosity and encouragement of our family, friends, sponsors, volunteers and community. We will continue our efforts to raise monies for research. We will continue to ask for your support.
Please remember: “Too often we underestimate the power of a touch, smile, a kind word, a listening ear, an honest complement, or the smallest act of caring, all of which have the potential to turn a life around.”- Leo Buscaglia