I just want to thank you all for being here. Every year, the night before Dylan’s race, I sit down to write a thank you to all of you and to all those who could not be here today. It is a time where I am forced to put into words my feelings of gratefulness and my feelings of hope, I am forced to sit still, (which, many of you know, I cannot seem to do) and reflect upon the past year. I think about some of the challenges Dylan has had to face. It is only recently that he has started to ask me questions like… “Why do we have a race? Why do I have to go to the Doctors so much? How come I’m not as big as so and so? Why do I have to take enzymes every time I eat?”
I know it’s wrong but I tend to take advantage of the fact that I can easily distract him and give him an answer, like ‘because…” And then change the subject.
This type of response is not going to be good enough much longer as he is getting older and I dread the day where I have to be more ‘specific.’
The night before this race is also a chance for me to reflect upon the kindness of others and the many relationships that have been strengthened and made over these past several years. It gives me strength and hope. It enables Dylan to continue being an active 10 year old boy. And… more importantly… It reminds me of my own struggle of trying to ‘stay in the moment’.
This fundraising event has enabled us to spread awareness of Shwachman Diamond Syndrome. There is still no cure. We will continue our efforts to raise monies for research. We will continue to ask for your support.
We could not have done any of this without all of you… Our family, friends, friends of friends, sponsors, volunteers and community.
Please remember: “Too often we under estimate the power of a touch, smile, a kind word, a listening ear, an honest complement, or the smallest act of caring, all of which have the potential to turn a life around.” – Leo Buscaglia
See you all next year June 18, 2011