Thank you so much for being here. Last night, after my kids went to bed, I sat down to write my annual thank you… to all of you. I sat alone in my thoughts, thinking of the year that has passed.
They say time is measured by moments not minutes. I thought about life and how it’s not always fair… but… it is good. There were more happy moments than sad, although the sad ones always seem to stand out. There were new relationships formed, there were some old relationships rekindled. Each moment that I sat and thought about, was a moment that impacted me in some way. Whether it made me think about someone, or brought on a certain feeling, or jogged up an old memory of mine that brought on a smile, it made me realize that time goes by way too quickly. That there never seems to be enough of it.
I used to measure time by how long it would be before Dylan would get another fever. I would measure time by how long it would take Dylan to gain a pound. By how long it would be before we would have to bring him back to the hospital for another visit. But I have to say that this past year has been …. wonderfully subpar.
We had a pretty good year and I feel like I missed it. Waiting for the ‘other shoe to drop’ is kind of stressful for parents of children with an illness. The child never expects that shoe to drop and so I thought to myself….This is one of the reasons they are so resilient. Another lesson learned. I had a good year. I missed it. Tomorrow is another day. Gonna start fresh. Going to stay in the moment. Am going to hug my children, take in a deep breath. And this time, I’m not going to wait to exhale. I encourage you all to do the same.
This race is now in its 8th yr. Over the years we have funded many research projects for this rare bone marrow failure syndrome. We have also been able to promote the need for cord blood/stem cell research. The monies raised have helped to establish The Shwachman Diamond Syndrome Registry, out of the Fred Hutchinson Cancer Research Center as well as the 6th international Scientific Congress for SDS to be held in late June at the NY Academy of Sciences.
We could not have done this race without the generosity and encouragement of our family, friends, sponsors, volunteers and community. We will continue our efforts to raise monies for research. We will continue to ask for your support.
Please remember: “Too often we under estimate the power of a touch, smile, a kind word, a listening ear, an honest complement, or the smallest act of caring, all of which have the potential to turn a life around.” – Leo Buscaglia